Baby dies because mother refused newborn vitamin K shot

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The cornerstone principle of preventive medicine is that it is better to prevent disease than to to treat it after it has developed. That seems to be a non-controversial principle, except, apparently, in the world of infant and child woo. There the typical response to devastating preventable diseases and injuries is to pretend that they won’t happen.

Homebirth advocates like to pretend that life threatening complications don’t occur in childirth; midwifery proponents like to pretend that there is plenty of time to transfer to physician care when life threatening complications do occur; anti-vaccinationists like to pretend that vaccines are unnecessary, and all of them delight in the fantasy that “good nutrition” and a “strong immune system” are magically protective against everything.

It has become highly fashionable among some Western, white, relatively well off women to refuse standard newborn preventive care, whether that is the Hep B vaccine, neonatal ophthalmic ointment, or vitamin K shots. Proponents of this transgressive behavior like to think that it marks them as independent thinkers. It doesn’t; it marks them as ignorant, gullible and willing to take terrible risks with the lives of their children for no better reason that to preen to themselves and others.

It also marks them as wishful thinkers who pretend that their child will never be exposed to hepatitis B, that their partner would never have an affair and become infected with gonorrhea and that their child’s blood will clot in the absence of adequate vitamin K.

As a result, children die agonizing preventable deaths like this poor infant who sustained massive intracranial bleeding because her mother refused the shot that would have prevented it.

According to the Coroner’s Court:

The baby’s … initial neonatal examination was also normal. In accordance with her parents’ wishes and the birthing plan, she did not receive Vitamin K, nor was she vaccinated for Hepatitis B. Information relating to the vitamin K injection was provided to the parents during their first antenatal visit. The information stated the reasons why vitamin K is recommended, namely that it assists the blood to clot and that newborn babies require it to prevent bleeding problems especially in the first few months after birth. The parents submitted a birth plan, which stated their decision not to have vitamin K administered…

The baby was exclusively breastfed (the major risk factor for vitamin K deficiency) and was doing well. Then:

One month after the birth, the mother noticed that the baby had been sleeping a lot and was not feeding as much as usual. She was noted to cry out at times and then settle. She went to sleep that night, but an hour later, she vomited. In the early hours of the next morning, the mother went to change her nappy and she was seen to be limp. The Queensland Ambulance Service (QAS) was contacted.

What had happened?

A CT scan … showed widespread subarachnoid haemorrhage and left sided subdural haemorrhage (bleeding on the surface and beneath the dura/lining of the brain). This was causing some effacement of the left ventricle (compression of the cavity within the brain as a result of increased pressure and mass effect). There was also loss of grey/white differentiation of the brain matter, which indicated damage to the brain and widening of the spaces between the skull bones. No fractures were seen. There was haemorrhaging within both eyes, and her pupils were non-reactive.

A blood test called an INR (International Normalised Ratio) was conducted. This test measures the time it takes for blood to clot and compares it to an average, with one being normal and 10 being extremely thin and prone to bleeding. The baby’s measurement was 10.

In other words, the baby had developed hemorrhagic disease of the newborn, the very condition that the vitamin K shot is designed to prevent. As a result, she bled into her head so much and for so long that her brain was compressed and destroyed.

The baby’s condition did not improve overnight or into the next morning. There remained markedly elevated intracranial pressure and her prognosis was considered to be extremely poor. She remained on ventilation over night. Following discussion with her parents, the baby’s life support measures were withdrawn the next morning and she subsequently died.

The baby died a painful, prolonged and entirely senseless death because the person she depended on to protect her, her mother, thought she knew better than the pediatricians for whom vitamin K has been standard prophylaxis for more than 50 years. Why did the mother think she knew better? Because she read it in a book or on a website and it sounded good to her.

Being a parent ought to mean putting a child’s health and brain function before anything else, including the mother’s desire to be transgressive, and even the mother’s distress at her child’s temporary discomfort as a result of an injection. It means taking the advice of experts, not pretending that you are an expert. It means doing whatever you can to prevent the child’s death and disability,not pretending that wishful thinking is a form of preventive care.

  • http://www.facebook.com/kayla.fields Kayla Svedin

    While this story is indeed tragic, tragedy cannot be avoided in every case. With HDNB, the risk is so so minuscule, and there are always risks to any medication. Parents should be well informed and responsible in making decisions for their families.

    According to http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2798607/ the actual risk of HDNB is 5 to 7 babies out of 100,000 who didn’t get the shot.That makes the actual percentages 0.005% to 0.007%. And of those 0.005-7% only 33%, or 0.00335%, will suffer severe disability or death. In other words, 3.35 infants out of 100,000 live births that are not getting a Vit K shot will suffer disability or death from hemorrhagic disease. Just some perspective in the numbers.

    There are things that make HDNB more of a risk, such as a cesarean delivery, and operative delivery using forceps or suction, hemorrhagic disease of one of the parents, preterm birth, and very low birth weight. All of these factors and actual risk percentages should be taken in to account.

    For a child whose parents have no histories of hemorrhagic disease, whose mother has a natural, non-operative, term birth, and had adequate vitamin K levels during pregnancy and breastfeeding, not getting the shot doesn’t put them at any significant risk.

    For a different numbers perspective, 1 out of 8 women, or 12.5% will be diagnosed with breast cancer at some point in their life (http://www.cancer.gov/cancertopics/factsheet/detection/probability-breast-cancer). However, we don’t take prophylactic measures to remove every baby girl’s breast buds since the risk of getting cancer is so statistically high. The risk of HDNB is so astronomically low, to inject the newborn population en masse without distinction is ridiculous.

    There are risks and side effects with the shot as well. http://web.archive.org/web/20070213093306/http://www.fda.gov/medwatch/SAFETY/2003/03Feb_PI/AquaMEPHYTON_PI.pdf

  • Gillian Rodgers

    The Factor V Leiden mutation is not a contraindication for Vitamin K shots. FVL is the most common inherited cause of hypercoagulability in people of Western European descent. It affects about 5% of Caucasians in the US. It is not standard procedure to screen for FVL in newborns prior to getting the shot, even for those with parents who know they have the mutation.

    I have one copy, too. I found out about it when I was 23, thankfully before I ever had any kind of a clotting event or pregnancy loss (although I have since miscarried twice, likely for unrelated reasons.) My pediatrician knows I have it, and hasn’t seen any reason to even bother testing my daughter for it, because at her age (3), she is still at an exceptionally low risk for hypercoagulation, even if she were homozygous. My husband, also of Western European descent, has not been tested.

    Factor V Leiden also exhibits incomplete dominance in heterozygotes. That is, heterozygotes like you and I have a 4 to 7-fold increased clotting risk over our entire lifetime compared to someone without a copy of FVL. The risk is still very low. This is in contrast to some one with two copies of the FVL mutation who has a 70 to 100-fold increased risk.

    PT testing prior to administration of Vitamin K shots is neither reasonable nor evidence-based. For one: It’s a vitamin. By definition, a vitamin is a chemical that is essential for life that is not synthesized by the body. For two: The FVL mutation is extremely common. Vitamin K shots have been routinely administered to ALL infants for the last 50 years in developed countries. If the Vitamin K shots were causing clotting events in infants with the FVL mutation, we would see a LOT of newborns, in the US and Western Europe especially, having clots, and the standard of care would be to at least screen all neonates for activated Protein C resistance prior to administering Vitamin K, and would more likely involve screening (aPC resistance) if not FVL PCR testing, of the mothers early in pregnancy (probably in the same course of bloodwork where they determine your blood type, and whether or not you are immune to toxoplasmosis or rubella.) As it is, most adults with FVL are completely unaware of it until they have a clotting event (or suffer repetitive miscarriages).

    For three: Factor V Leiden causes resistance to Protein C, which is Vitamin K-dependent, and acts as an anticoagulant. Those of us with an elevated clotting risk due to resistance to a Vitamin K-dependent chemical can only benefit from having the proper amount of Vitamin K.

    The risk of the Vitamin K shot is extremely low, even for people with the Factor V Leiden mutation. But more importantly, the risks associated with getting the shot are amazingly lower than the risks associated with NOT getting the shot. It is also easier and faster to diagnose and treat a blood clot, even in an infant, than it is to diagnose and treat an inappropriate bleed like in this article.

    Spoiling for a fight with the hospital over an unnecessary test (which requires time, resources and personnel which could all be devoted to people who actually *need* them) does not make you seem well-informed or a subscriber to evidence, and it just puts you in an unnecessarily adversarial position with people who are trying to help you and your baby.

  • lovingfather

    Sorry to hear about an infants death, it is a tremendous tragedy and my deepest sympathy. Has anyone looked at the composition of the vitamin k? It is a fake/synthetic form (not a true vitamin) and contains propylene glycol (additive in antifreeze in cars) which is NEVER explained to the parent. Proof that it works is like trying to tell someone that a watermelon is blue inside before you cut the skin (prove me wrong); people have been born for thousands of years without; we are still here aren’t we? Physicians will say “you understand the risks if you don’t let you baby have the shot?” Yes there has been deaths; but what about the side effects that they have not discovered yet by giving a person a whole life of illness or complications to arrive later in life. Through LIES and FEAR people are pressured to give in. Fear drives a person to death, Faith leads a person to hope.

    My wife and I just had a beautiful baby girl. It was a very long birth and we refused the vitamin k, and all vaccines. We, as all parents do, have fears and hope for the best for our child, but we chose to fight that fear and enjoy every moment with her. She is still very heathy. (immune system gets stronger if you allow the body to naturally fight) The mother’s early breast milk (colostrum) has all the infant needs.
    please do some research, look up definitions. God made everything in perfect design!

  • lovingfather

    Sorry to hear about an infants death, it is a tremendous tragedy and my deepest sympathy. Has anyone looked at the composition of the vitamin k? It is a fake/synthetic form (not a true vitamin) and contains propylene glycol (additive in antifreeze in cars) which is NEVER explained to the parent. Proof that it works is like trying to tell someone that a watermelon is blue inside before you cut the skin (prove me wrong); people have been born for thousands of years without; we are still here aren’t we? Physicians will say “you understand the risks if you don’t let you baby have the shot?” Yes there has been deaths; but what about the side effects that they have not discovered yet by giving a person a whole life of illness or complications to arrive later in life. Through LIES and FEAR people are pressured to give in. Fear drives a person to death, Faith leads a person to hope.

    My wife and I just had a beautiful baby girl. It was a very long birth and we refused the vitamin k, and all vaccines. We, as all parents do, have fears and hope for the best for our child, but we chose to fight that fear and enjoy every moment with her. She is still very heathy. (immune system gets stronger if you allow the body to naturally fight) The mother’s early breast milk (colostrum) has all the infant needs.
    please do some research, look up definitions between natural and man made. God made everything in perfect design!

    • The Bofa on the Sofa

      Has anyone looked at the composition of the vitamin k?

      I have. What of it?

      It is a fake/synthetic form (not a true vitamin)

      Indeed, it is not a true “vitamin,” because it doesn’t contain an amine. “True” vitamins are amine based, of course (hence the name, “vital amine” = vitamin for short)

      Oh, that’s not what you meant? Hint: synthetic does not equal fake. (I don’t even like using the phrase “they are chemically the same” because, given that they are the same molecule, that means they are the same thing. That’s what it means). What is vitamin K if not the substance with the particular structure?

      and contains propylene glycol (additive in antifreeze in cars)

      It’s also an additive in a lot of other things, too, including ice cream and baked goods. And?

      Yes, anti-freeze is poison, but that is because of the ethylene glycol, not the propylene glycol. Did whatever dishonest anti-vax site you are parroting tell you that much? (for pete’s sake, it’s on wikipedia, so it’s not like it’s hard to find)

      If you love your daughter, you should do things that are known to help her. Vaccination is one of the most effective things you can do to protect your kids from illness. Do it.

    • Jen

      BOFA already provided you with accurate information about the composition of the Vitamin K shot. I’m glad to hear that your daughter is healthy. However, I think it is you who needs to do some research to understand the risks of refusing the vitamin K shot for your daughter. Breast milk does not provide adequate Vitamin K to a newborn who has underlying liver disease. In fact, breastfed babies who have underlying cholestatic liver disease are at especially high risk for a late VKDB. It is often true that cholestatic liver disease is diagnosed several weeks after birth. Some of these babies are diagnosed with liver disease during their autopsy, after a VKBD.

      http://pediatrics.aappublications.org/content/121/4/e857.full.pdf

      My son looked no different from any other completely healthy newborn. He had an uneventful birth, following a normal pregnancy. He was just like any other baby. At 6 weeks of age, he began to look mildly jaundiced. After multiple visits to his pediatrician, he was finally diagnosed with biliary atresia at 9 weeks of age. He had a liver transplant this past June and is now an energetic 4-year-old boy. Thankfully, he had his vitamin K injection at birth.

  • http://www.facebook.com/kathleen.neely Kathleen Elizabeth Neely

    C is for Chesus and K is for Kabala and country type Christian people dont like that stuff LOL

  • http://www.facebook.com/kathleen.neely Kathleen Elizabeth Neely

    it kills me to see my child get a shot or suffer in any way.. When they cry, I cry..

    • Gillian Rodgers

      You must cry an awful lot.

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